CureDuchenne Presents the Experts on Duchenne Muscular Dystrophy Research

2008-07-16T15:06:00.000-07:00

Fortunately, the pace of research for Duchenne muscular dystrophy is increasing. We like the fact that it’s hard to keep up on new developments. Two novel therapies are now in human trials, PTC124 from PTC Therapeutics and exon skipping from Prosensa. CureDuchenne is proud to be a supporter of both projects.

CureDuchenne gathered a few world renowned experts on Duchenne recently and they were kind enough to talk to us about today’s research and tomorrow’s hope. Please pass this video on to your friends and family. The more the world knows about Duchenne, the sooner we’ll be able to raise the money needed to fund life saving research. Please be sensitive however, we don’t sugar coat the nature of Duchenne and young eyes should be protected from too much information.

CureDuchenne is in the process of evaluating several research projects and we will be excited to share them with you shortly.

Thank you for your continued support,

Paul & Debra

Cure Duchenne Draws Star Power with Anne Heche, James Tupper, Willie Garson, Kevin Weisman and More!

2008-07-09T21:57:00.000-07:00

Where there’s a “Will” there’s a way!

Thanks to the Martin family and Prosum Technology, Title sponsor for Dealing for Duchenne, our first Los Angeles fundraising event was a star-studded success. Held at the famous Petersen Automotive Museum in Los Angeles, this event raised $200,000! Our sincere thanks to Willie Garson (Sex & the City), Anne Heche and James Tupper (Men in Trees), Josh Malina (West Wing), Joel Murray (Still Standing & our celebrity auctioneer), Hayley Norman (Hancock) and Kevin Weisman (Alias) for their compassion and commitment to helping us find a cure for our boys.

Thanks to Ralph Garmon's promotion of our event on the Kevin and Bean show on KROQ, 450 attendees joined the fun. Everyone had a great time mingling with the stars, dining on fabulous cuisine from Wolfgang Puck's, gambling and bidding on more than 150 great auction items.

UPCOMING EVENTS

Chance for a Lifetime Gala- SAVE THE DATE!

October 25, 2008
6:30PM
Balboa Bay Club, Newport Beach, CA
Dinner, Dancing, Silent/Live Auctions, Live Entertainment

Special Thanks to Drs. Leland Powell and Linda Baum who graciously donated the Westin Cancun Getaway package as a grand auction item for this event.

6th Annual Link Up/Listen Up for the Cure

(Minnesota - August 2, 2008)

GOLF TOURNAMENT

12:00 pm Registration
1:15 pm Info Announcement
1:30 pm Shotgun Start
$95 per Player
(Price includes Golf, Cart, Range Balls, BBQ and Concert.)
BBQ/Prizes to immediately follow

CONCERT

8:00 pm CatchPenny Concert
BBQ & Concert - $25 per person
Concert Only - $10 per person
Special Guest Performance by: Without Annette
(Golf participation not required)

For more information or to register, CLICK HERE.

FAMILY & FRIENDS MAKING A DIFFERENCE

Link Up for the Cure Austin (Texas - June 21, 2008)
Iron Man Tim Revell put on another great golf tournament at the prestigious ShadowGlen Golf Club in Manor, Texas. Die hard Texas golfers braved the heat and linked up for the cure...for Timothy.

To support Tim's efforts, visit Timothy's fundraising page:
CLICK HERE

Save Our Son (Florida -May 23, 2008). This year the Procko's did a great job of involving their community for a fun evening at the Branford High School auditorium. Their son, Evan, was recently diagnosed with Duchenne and they wanted to raise the public's awareness and raise funds for CureDuchenne to support the research that will hopefully lead to a cure. The event was hosted by Miss Florida, Kylie Williams, and organized by Diane Walker of Friends Fine Things, as well as Evan's parents, Bill and Kim Procko of O'Brien. More than 200 people enjoy the evening's entertainment which included singers, dancers and performers (both amateur as well as professional) with several prize drawings mixed in between the acts.

To show your support of Evan and visit his fundraising page:
CLICK HERE.

Racing for Timothy

(Austin Marathon, Texas, February 17, 2008). Once again, the Revell's raced for the cure. Proudly flying the CureDuchenne Crusader Cape, Tim, Laura and a team of supporters made the run for life. Thanks to Tim's untiring efforts, CureDuchenne was named one of the Marathon's endorsed charities.

To support Tim's efforts, visit Timothy's fundraising page:
CLICK HERE

Cuddle Up for the Cure (Minnesota-February 8, 2008). Minnesota Cares! Thanks to the efforts of Craig Urseth, the second Cuddle Up for the Cure, held at Greenhaven Golf Course in Minnesota, was a huge success. Attendees enjoyed dinner and a great concert, with Catchpenny, The Phones and Phil Solem.

For more on this event or to view the TV special that Fox 9 (Twin Cities, MN) did on CureDuchenne, CLICK HERE.

Jack's Reality (California - October 2007), once again, raised almost $100,000 in donations from star-studded auction items, and an exciting night of charity gambling. Held at the prestigious Coto de Caza Country Club in Southern California, this event proved to be another great event put on by the Herzfeld family.

To show your support for Jack, visit his fundraising page,
CLICK HERE.

Rocking for Research II (September 7, 2007). Thanks to the efforts of the Goin family, CureDuchenne rocked the Denver community at the Cherry Creek Marina & Yacht Club. Catchpenny and Phil Solem (The Rembrandts) gave great performances and entertained more that 100 attendees.

To show your support of Gavin and Logan, visit their fundraising pages, CLICK HERE.

CureDuchenne Public Service Announcement

2008-07-09T15:46:00.000-07:00